A new review of studies reveals that incorporating SMA into newborn screening programs yields clinical improvements and ...

Disability life coaching is turning out to be just the balm columnist Brianna Albers needed to recall the importance of community in SMA.

Columnist Ari Anderson pays tribute to his mom, who excels at many roles, including advocate, manager, teacher, and caregiver ...

Fatigue in the diaphragm may contribute to breathing issues in people with spinal muscular atrophy, a new study reports.

SMA gene therapy Zolgensma safely improved motor function in children with SMA who needed tracheostomy, a real-world study ...

Sixteen years after her daughter's diagnosis of SMA type 1, guest columnist Cherie Ehlert is no longer counting the months, ...

Columnist Helen Baldwin finds the perfect gift for her granddaughter's birthday, one of the many unexpected blessings in her ...

Columnist Connie Chandler writes about her family's tradition of baking and decorating holiday cookies, a project that SMA ...

Cherie Ehlert lives in Vancouver, British Columbia, Canada. She is a disability advocate and created “Charlie's Angels” to ...

Columnist Connie Chandler gives thanks for the acts of kindness her caregivers perform — the sweet stuff that makes life so ...

The specialty pharmacy Orsini was selected as a partner to provide Itvisma, the newly approved gene therapy for people with ...

The FDA's approval of SMA treatment Itvisma marks an "important moment" for the SMA community, a Novartis executive says.